Think of the retina as a wall lined with two kinds of light-sensing tiles — rods for dim light, cones for bright light and colour. Retinitis Pigmentosa is what happens when that wall starts losing tiles, gradually and in a fairly predictable order, though the pace differs from one patient to the next. It’s the single most common inherited cause of progressive sight loss on record, which explains why RP questions come up so often from patients across Kenya once a local eye specialist first raises the term.
There’s no universal timeline that applies to every RP patient, so the first real step of any consultation is figuring out exactly where a given patient sits on that timeline. That single piece of information — how far the disease has already progressed — ends up shaping almost everything else in the conversation that follows.

Associate Professor, Vitreo-Retina Surgeon. 10+ Years Experience

Senior Consultant Ophthalmologist & Eye Surgeon· 26+ yrs experience

Consultant Ophthalmologist & Eye Surgeon, MD, DO .16+ Years Experience
When a patient’s evaluation supports it, regenerative stem cell therapy becomes one part of a larger plan aimed at protecting whatever retinal function is left. Alongside that sits low-vision rehabilitation, practical guidance on lighting and safe movement, and dietary advice — the goal being that a patient from Kenya leaves not with a single procedure but with a structured, ongoing way of managing the condition long after the visit ends
“Not necessarily, and this varies a great deal between individuals — it comes down largely to which gene is responsible and how it’s passed down. Plenty of people with RP hold onto real, usable vision, particularly in the centre of their field, well into old age. That’s why we look at each case on its own rather than assuming a single fixed outcome for everyone under the RP label.”
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That comes down to the inheritance pattern of the exact gene responsible, and genetic testing is the most reliable way to establish that. We can walk you through what it likely means for your family, though for decisions about future children, we’d suggest bringing in a certified genetic counsellor alongside that conversation.”
“A standard eye check is designed to pick up things like refractive error or cataract, not RP. Confirming and tracking RP needs equipment that most general clinics simply don’t carry — ERG and detailed field mapping in particular — which is why a dedicated evaluation usually means travelling somewhere it’s available.”
“Bring whatever eye reports you already have, a rough sense of your family history if RP runs in the family, and a timeline of when symptoms started and how they’ve changed. That background alone speeds up the whole diagnostic process considerably.”
